Filed Under (caregiving) by admin on 28-02-2010

By night (and weekends) I run several websites designed to help familes that are dealing with parent or other loved one with declining health. By day (for the past 18 years), I am the executive director of an assisted living community.

So it was natural for my old high school friend to write me when his mother-in-law was in the hospital and could not safely return to her home. I used our emails and wrote to articles for an on-line magazine website called ezinearticles.com (http://ezinearticles.com/?Assisted-Living-Insider-Secrets-From-a-Veteran-Administrator&id=3795816). And I am going to share them with you here.

Yesterday, an old friend contacted me, asking about placing his mother-in-law in an assisted living. However, after answering him in a series of emails, I realized that other people facing the same decision might be interested in the same information. Here’s the interesting thing I discovered about myself in the process – my tone with him was different than if I were going to write for my blog or for an Ezine article. As a result, so were the tips that I would normally give – they were not very ‘politically correct’. But thinking about it, I would not change a word.

In many ways, it was much better because of my mind set. I was focused on giving my friend advice rather than writing a “well written” article. So except for a few deleted lines that would identify my friend, here is some good advice about picking an assisted living:

Hi Donahue, How’s everything? We need to catch up soon. Need your input – soon – We are looking at places (assisted living) for Mary’s mom – she has continuing health issues primarily heart and respiratory. Would you look at the attachments and let me know your thoughts on these two places? Thanks so much, John

Hey John, I will look at the attachments closer later, but let me first highlight some important stuff to consider: First of all, if there is a non-refundable “community fee” of any kind, it is negotiable.

What is going to be more important than the room layout and the view and the transportation and all the other B.S., is how much care is going to cost. How do they charge for extra care? By levels of care? or by minutes? And when you find out – figure out what your maximum budget is, and what the most she will have to pay if she gets ALL their services.

Next, ask the facility about what would cause her to HAVE to move out? Ask them if they have a hospice waiver. (they are in California, so their rules are exactly like mine and I can tell you, if they do not have a hospice waiver, then when she gets towards the end, they will kick her out to a nursing home).

Ask them about house doctors (do they have a doctor that comes to the facility to see clients), and are home health care agencies allowed in the building? and if so, do they require that you use theirs or if you can pick your own. I will explain why this important later.

Ask about wheelchairs. Are they allowed? What about motorized ones? Does mom have a dog or cat? Many place will let you bring it…for a fee. It too is negotiable.

The important thing to understand is how they charge between the room (and basic services) and care (optional services). They are much more likely to negotiate the room but they rarely negotiate care services. The best case scenario for you is to get them to lock in the rate for two years (or more). That is where they will try to screw you later, because they can raise their rent as much as they like. So make sure you trust the place. Anyway, think about this stuff and I will get back to you after I look at the marketing materials you sent me.

cheers, DV

The second round of emails really got interesting and some never revealed stuff about assisted living gets revealed, so stay tuned. Better yet, sign up at www.easycaregiving.com

Donahue Vanderhider, a Gerontologist practicing in Southern California, can be found at http://www.caregiverrelief.com. Donahue has a deep understanding and extensive knowledge of Aging and all its related disorders: both normal and abnormal. He has a Masters Degree from USC and postgraduate training in Clinical Guided Imagery, Metaphysics, and Neuro-linguistic Programming. He is also on an advisory board to the Alzheimer’s Association. His passion and life-long goal is to improve the quality of life of caregivers, especially those dealing with Alzheimer’s. Currently his active blogs are at the site mentioned above.



Please follow this article to get free caregiving materials from a dedicated caregiver himself:

Former caregiver Robert Coyne reminds caregivers in attendance at the Frank R. Strang Senior Center in Farragut never to ignore the cardinal rule of caregiving – taking care of their emotional and physical needs first!

Why? Because he knows whats its like. Speaking of his wife he says “When she passed away in 2003, I was left with an incredible sense of guilt. How many mistakes did I make? Could I have done a better job? Could I have prolonged her life? There were no answers,”

Like I said in my last blog post, few people rarely prepare to be caregiver,

It’s a challenge very few are prepared for. It’s a labor of love that can quickly turn into a living nightmare for everyone involved.

Few people understand the terrible consequences better than Robert Coyne. His personal experiences now serve as a wake-up call to other individuals finding themselves in the role of caregiver.

Robert took an early retirement when his wife, Kathie was diagnosed with an illness that would eventually claim her life five-and-a-half years later. 

“Nothing in my professional background prepared me for this undertaking,” Robert said. “I experienced the entire gambit of emotional, physical and physiological issues resulting in my suffering a heart attack followed by open heart surgery. I was fortunate enough to recover and return to my duties as Kathie’s caregiver.

“When she passed away in 2003, I was left with an incredible sense of guilt. How many mistakes did I make? Could I have done a better job?

Could I have prolonged her life? There were no answers,” he recalled.

Naturally he fell into a deep depression and could not see any way out. The pain was to much too bear. “Finally a physician who I respected greatly told me in no uncertain terms to concentrate on something else, start thinking about other people. I did just that and began researching the availability of resources for caregivers. I needed to educate and help others caring for a loved one.”

Devoting all his labors to the memory of Kathie, wife, mother, grandmother and best friend, reaction to Coyne’s seminar was instantanious with inquiries and future bookings.

“It’s been nearly two years, and I’m still presenting the three- and six-hour sessions on a semi-regular basis. I do my best to keep the attendance down to between 10 and 20 for each session. It’s a private, intimate relationship, caregiving. You will find that those who attend quickly converse with one another in a manner of understanding and kinship. They rarely give their names but exchange personal experiences benefiting everyone.”

Local churches, non-profit organizations, area hospitals, senior groups are just a few of the outlets taking advantage of Robert’s knowledge. “Everyone attending receives a 90-page reference guide and handouts. The seminars are free of charge. I do ask for a small donation for printing expenses, but there is no pressure. My only concern is getting this information out into the hands of people who really need it,” Coyne said.

Coyne, may be contacted at bobcoyne@charter.net

I just emailed him myself, so I cannot guarantee the results, and if you do not want to take a chance, I will post my results in a couple of days. (lets see if I hear back myself?)

Source: Elizabeth A. Pooley/Special to the News Sentine

 



Filed Under (Uncategorized) by admin on 19-01-2010

As a gerontologist, I have spent 20 years in the world of aging. I have witnessed and helped hundreds of people deal with the ravages of poor health and aging. I have seen super healthy 98 years olds, and I have seen miserable chronically ill 68 year olds.

I can honestly say that for first 10 years I could not make rhyme or reason of how or why some people lived active youthful golden years and others did not. I mean I saw some of the obvious clues. (There are not very many 80 year old smokers, life-long exercisers tend to be limber their whole lives). And some people had great genetics. But for the vast majority of people, I could not see the life-style habits that made the difference between healthy aging, normal aging, and abnormal frail aging.

But knowing what I learned at the University, I have been watching for certain clues. I began to see the things that people were doing that had a genuine effect on their health, and which things seemed to make no difference. The best guinea pig is my dad, who in his late 70s, has been an insulin injecting diabetic for 20 years and remains healthy and vibrant with light exercise (swimming at the YMCA), and supplements.

Yes supplements!… Besides the genetically gifted people, those that stayed healthy into their late life where 1. those that consciously stayed active and 2. right behind that were those that took the right products – nutritional and vitamin supplements.
Discover why health professionals are calling Resveratrol the Fountain of Youth!

Which makes perfect sense. Because there are only two proven anti-aging, life extending theories. Caloric Restriction and anti-oxidants. This is not my opinion, it is fact. Look it up! And when I say proven, I don't mean a fringe crack-pot's unsupportable claims, I mean scientifically studied and accepted by repeated research, theory.

Based on that, I see people that take anti-oxidant supplements staying healthy and disease free, while others are succumbing to the ravages of time all around them. Consequently, I have researched the best anti-oxidants for the money. I take them myself, and I recommend them to my clients and friends.

Recently, I have decided to personally endorse the same products that I research and take myself. My favorite is the ingredient that they have distilled from the skins of grapes. Its called Resveratrol. You may have seen the 60 minutes piece or read a story in the newspaper about it. Its usually touted as being the result of drinking red wine. But the truth has nothing to do with wine, and everything to do with grapes. If fact scientists have distilled greater concentrations of Resveratrol products other than grape skins.

But before I ramble on, let me send you straight to a great offer (yes, if you order I will get rewarded), but it will not cost you more to order here, the price remains the same if you buy from me, or go to the site on your own. Please, just know that I found the product that I use first, then applied for the relationship, not other way around. Check it out. Do your on research. But try it!


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Day to day caregiving is difficult enough. However when dealing with Alzheimer’s, the very nature of this disease and the way it affects the brain frequently have added frustrations and difficulties, which make Caregiver’s lives just that much more difficult. Our mission at www.caregiverrelief.com is to make sure you have every advantage possible. Please join me at that site and sign up HERE on the upper-left corner, for a FREE newsletter and received a FREE stress management guided imagery recording.

Today, part two of our series, we are going to talk about incontinence. The primary source for the following is great booklet from my library called “Understanding Difficult Behaviors: Some Practical Suggestions for Coping with Alzheimer’s Disease and Related Illnesses”. It was written 20 years ago but has stood the test time, as one of the best resources for Alzheimer’s. It was first published by the Geriatric Education Center of Michigan.

INCONTINENCE

The first thing we should say is, it is not necessarily permanent. Except in the very late stages, it is controllable. It’s just a matter of how much time and effort you have to put into helping your loved one become autonomous when it comes to going to the bathroom. Remember there are different levels of incontinence. For example, a person may have bladder incontinence, or bowel incontinence, it could be only night time incontinence. Let’s take a look

Possible Causes are physiological, medical, and environmental.

Here’s a very long list of causes:

* Infections, such as urinary tract infection (UTI) urethritis or vaginitis, can cause loss of urine control.
* Men are especially susceptible to infections after prostate surgery.
* Prostrate problems in men can cause retention of urine
* In women, constipation or fecal impaction can block the bladder so that urine leaks past the blockage.
* In older women, weak pelvic muscles can sometimes cause “stress incontinence” or “leaking” This may happen when a person laughs, coughs, or sneezes.
* Chronic illnesses such as diabetes, Parkinson’s disease, strokes or any other condition which limits mobility and/or causes chronic pan (e.g., rheumatoid arthritis) can make it difficult to get to the bathroom.
* Vision changes can make it difficult to see the way to the bathroom or the bathroom door properly.
* Insufficient intake of fluids can cause irritation of the bladder.
* Dehydration may cause incontinence by lowering or eliminating the signal to urinate.
* The urge or signal to go to the toilet may no longer be understood or received by the brain (due to brain changes due to dementia).
* Fluids having a diuretic effect, such as coffee, tea, cocoa, beer, colas, can affect control of urine.
* Medications, especially tranquilizers, sedatives and antidepressants can affect incontinence. These are often given to facilitate sleep or calm behavior but these drugs can also affect bladder muscle function and/or reduce a person’s sensitivity to body signals. Diuretic medications such as Lasix can also increase frequency of urination.

ENVIRONMENTAL CAUSES

* Distance to the bathroom may be too far.
* Bed may be too high from the floor, making it difficult for the person to get up.
* Floor and toilet seat may be the same color, making it difficult to find the toilet.
* Improper footwear may cause person to be afraid of falling.
* Persons may have trouble undressing to go to the toilet.
* Lack of privacy, particularly in institutional settings, may inhibit the person.
* Poor lighting may make it difficult to find the bathroom or to locate the toilet inside the bathroom.
* Orientation cues (signs) may be lacking which could help the person locate the bathroom.
* In nursing homes, being in bed with rails, being restrained or lying on protective pads may give residents the message that they are expected to be incontinent.

OTHER CAUSES

* Person may not remember what to do once in the bathroom.
* The task may be too complicated.
* Person may need help undressing, sitting on the toilet, wiping or rising from the toilet.
* Person may be fearful or anxious about having to partially undress in front of an unfamiliar caregiver.
* Caregiver may not be giving simple or clear enough instructions.
* Caregiver may be rushing.
* The person may no longer be able express need to urinate.

COPING STRATEGIES

If you really want to help, observe carefully and assess the problem.

* Do accidents happen only at certain times of the day or only at night?
* How often does the person urinate?
* Did the incontinence begin suddenly?
* Is the person urinating in improper places, such as in flower pots or in closets or in the kitchen sink?
* Do accidents happen on the way to the bathroom?
* Keep a diary or a log for several days noting times when accidents occur and the amount of fluid intake and output. The information will give you clues and also be helpful to the doctor.
* Have a through medical examination to discover any possible infections or medication problems that may be contributing to the incontinence.
* If a person has a fever that persists for more than 24 hours, report it to the doctor at once. Urinary tract infections are often accompanied by fevers and can be dangerous if left untreated.
* Be aware that a number of medications can be used to treat incontinence. However, these drugs may cause side effects such as dry mouth and eye problems and therefore must be carefully monitored.
* If a diuretic is being taken, it is important to carefully consider the times of day when it is given.
* Consider a continence diagnostic evaluation if the cause of the incontinence is still unknown. This would involve a series of tests that can determine how well the urinary system is functioning. These procedures are, however, uncomfortable and expensive and the benefits need to be carefully evaluated on an individual basis.
* Be sure the person is drinking adequate fluids – a minimum of 5 – 8 glasses daily. Many dementia victims forget to drink or may no longer recognize the sensation of thirst. A wide variety of substances act as fluids, e.g., jello, popsicles, ice cream. Also, try herbal teas and decaffeinated coffee; caffeine can affect continence adversely.
* Set up a regular schedule with specific times for the persons to have something to drink, e.g., with meals and three daily snacks.
* Observe toileting pattern of the person both during the day and at night. Try and toilet just before his/her expected time. This may vary from every two to four hours.
* Remember to toilet them before and after meals and immediately before going to bed.
* Make sure the person actually urinates before getting off the toilet.

VERY IMPORTANT

* Communicating with some one that has Alzheimer’s takes a conscious effort: When trying to direct someone simplify the steps involved. Do one step at a time.
* Use short words and short, simple instructions. For example: “Sit down.”
* Watch for nonverbal clues that the person with dementia has to go to the bathroom, such as reaching for a belt, tugging at a zipper or taking pants down. Also watch for restless behavior or facial expressions that may signal distress.
* Make sure that sitters, nursing home staff or other paid caregivers understand the terms or words that are familiar. Some people may use children’s words or slang like “pee” “tinkle” or “take a leak”. Make sure that the Alzheimer’s sufferer knows the words they are using.
* Listen carefully, because the person may say the wrong word. For example “I want tea” or “take a peek”
* Even severely impaired people do care when they have had an accident. Saying something like “Soon, everything will be all right” or “Don’t worry, everything will be fine” may reassure the person.

CLOTHING

* Simplify clothing. Try Velcro tape instead of zippers or buttons.
* Try elastic waistbands for trousers or wrap around skirts.
* Use underpants when possible. They can serve as a reminder to stay dry and as a stimulus to use toilet when wet.
* Change clothes when they are wet. Try not to let the person become accustomed to wet clothes.
* Select clothing that is washable and does not need ironing. Tennis shoes may be easier to keep clean if person is incontinent.

PROTECTIVE GARMENTS

* Adult briefs, are sold small, medium, large and extra large. Make sure you get the right size. A little too small an they may pinch or be uncomfortable, too large and they will not be leak proof and fall down when wet.
* Washable briefs are available with snapping plastic outer layer. Disposable briefs are bit pricey.
* Washable pants with disposable pads are and alternative for urinary incontinence only.

SKIN CARE

* Wash the skin after any accident. It is important to keep the person’s skin clean and dry to prevent rashes and sores. There are special products available which act as both soaps and skin conditioners. Look into creams for adult diaper rash.

AT NIGHT

* Consider putting a commode beside the bed, especially if the person has trouble moving around.
* Make sure there are night lights in the bathroom, hallway and bedroom.
* Make sure there is no clutter or obstacles in the pathway to the toilet. Falls often occur on the way to the bathroom at night.
* Make sure footwear is not floppy or slippery.
* Use disposable pads and rubberized flannel sheets to protect bedding.

BATHROOM AIDS:

* A raised toilet seat with grab bars makes it easier for a person to get on and off the toilet.
* Make sure the seat is fastened securely to the toilet so that it does not slip when a person sits on it.
* Padded toilet seats are more comfortable for the person who must sit for some time.
* If getting to the toilet is a problem, place a chair style commode near the bed. Make sure you leave the top off at night.
* Grab bars attached to the toilet seat are wall-mounted.

OTHER CONSIDERATIONS

* Purchase washable chair cushion covers.
* Soiled clothing hidden in a closet, under the bed or in a dresser drawer may be signs of incontinence.
* It is very important to respect the privacy and dignity of the person who may be having problems with incontinence. Losing control can be a terribly humiliating and embarrassing experience and caregivers need to be sensitive to these feelings. Every effort should be made to preserve the person’s self-esteem, for many dementia victims are quite aware of their deficits.
* Family member s and other caregivers also may feel embarrassed to awkward when assisting with toileting and should be aware that these are normal feelings Sometimes people find cleaning up to be a very difficult and unpleasant task and may gag. Try to be calm and reassuring and recognize that both of you probably feel quite uncomfortable.
* It goes without saying, put lids on waste paper baskets and other trash containers.

Wow, that is big topic. Again, like the previous topic “anger and agitated behavior”, we are only scratching the surface of possible causes and solutions. But I sincerely hope you will help me by signing up for my newsletter at the following link and you will receive a free eBook on handling wandering and Sundowning Good luck, and write me with any questions that you have, Donahue

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This is the most amazing video, you will smile from ear to ear when you watch it.

Back to Caregiving now….

please sign up, I have a great newsletter coming out, and I want you to have it.

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Hello! If you came here from another site, like www.caregiverrelief.wordpress.com or www.caregiverhelp.blogspot.com, then let me direct your gaze to the upper-left side of this page: you will see that sign up form? Please put in your information and I promise you two things. One, I will never give your information to another person, and two, I will never inundate you with useless, intrusive sales pitches. You will get an occasional newsletter, and when I we launch Alzheimer Secrets you will be offered first crack at the CD (there are limited quantities), and that’s it! But if you are a caregiver or have someone with Alzheimers in your family…you better sign up quick, there is information that you need ASAP.

If you did not come here through one of those sites mentioned above, please continue, I have a short message about anxiety and to deal effectively with it.

Learning to Relax with Anxiety

Many anxiety sufferers are learning the proper cognitive tools to overcome their anxiety. It isn’t easy. It takes commitment. Learning to relax with anxiety takes daily practice and commitment. Here are some relaxation tips to get you started:

1. Acceptance – Whatever we resist will persist. Try not to see yourself as fighting your anxiety. Instead, see yourself as moving toward your goal of relaxation.
2. Talk to someone – Many anxiety sufferers feel better almost immediately when they have a supportive person to talk with.
3. Knowledge – The more you know about your condition, the better equipped you’ll be. Things work better when we understand why we are doing them.
4. Breathing Techniques – Practice belly breathing. Breathe in to the count of 3 and out to the count of 4.
5. Meditation – Listen to guided meditation tapes or CDs.
6. Journal – Keep a notebook handy during the day, and when you recognize a “what if this happens?” thought forming, write it down. Review it later, when you are more relaxed. Ask the trigger question again, as if it were true. What would you do? Keeping a journal helps you discover possible hidden issues.
7. Take a nightly news vacation – Before bed, listen to relaxing music or read a book. If your habit is to watch the nightly news, try watching it first thing in the morning instead.

Learning to relax with anxiety will command your daily dedication. Be sure and celebrate even minor improvements. They are likely to be permanent ones!

Please make sure you sign up for the FREE stress management CD, and you will automatically put on the newsletter notification list.

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I’m on the speakers bureau of the Alzheimer’s Association and this weekend I am giving a talk on “Partnering with Your Doctor” In the materials that the Alzheimer’s Association provided me for the talk was a short little quiz. I was impressed with this short 12 question survey, and thought you would like to see it too.

In my experience, caregivers often lose focus when they take their loved one to a doctor. Maybe you do too? Do you feel rushed when the doctor finally comes into the examination room? Do you sometimes leave the office and remember something important you wanted to discuss with the doctor? Or do you start running at the mouth frittering away your time with the doctor talking about the minutiae of your loved one’s behavior or symptoms and get side tracked from the important changes that you should have covered.

Here’s the quiz, lets see how you do. And remember afterwards to go over to either www.easycaregiving.com or www.caregiverrelief.com and sign up for the newsletter.

One more thing: I noticed that the quiz seems to be written to you and about your own doctors visits. If you are a caregiver for a memory impaired person please mentally re-word the questions so they fit your circumstances.

(Keep track of your answers so you can determine your score afterward.)

Do you usually:

  1. Make a list of questions, symptoms and concerns before your doctor visits? (Yes or No)
  2. Bring a friend or family member with you to the doctor’s office? (Yes or No)
  3. See the doctor right away when you feel like something is wrong? (Yes or No)
  4. Ask your doctor questions about your symptoms and concerns? (Yes or No)
  5. Bring a list of your medications and medicine bottles with you to your doctor visits? (Yes or No)
  6. Ask your doctor what you need to do next about your illness? (Yes or No)
  7. Make decisions about your care together wit the doctor? (Yes or No)
  8. Ask your doctor what results and side effects you can expect from your medications and treatments? (Yes or No)
  9. Take notes during doctor visits? (Yes or No)
  10. Leave the doctor’s office with all your questions answered? (Yes or No)
  11. Ask your doctor for written information about your medical condition? (Yes or No)
  12. Ask the doctor for a diagnosis so you know exactly what the problem is? (Yes or No)

Count the number if times you circled “yes” (score: _________)

0 – 4 = I am not a very active health care partner

5 – 8 = I am somewhat of an active partner

9 or more = I am a very active healthcare partner

So how did you do? Is there room for improvement? Not to worry – you are on the right track, you will be fine.

Remember you have two websites that can help you with all your caregiving questions. Start with www.caregiverrelief.com and stay updated with www.easycaregiving.com and don’t forget to sign up for the FREE newsletter at either site.

Please help me keep this blog active and at least visit my sponsors website. (Not to mention that its an amazing product that I use faithfully) “>CLICK HERE for the ResV site and you can get a FREE sample by using this link!

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Filed Under (alzheimer's, caregiver stress) by admin on 14-11-2009

Today I want to share a grim story with you. If you watch the news it may have caught your eye. But I want to post it in its entirety here.  It may be that you are like Bobby, taking care of one or both parents with Alzheimer’s.  If you have been doing it a while then you may identify with Bobby quite a bit.  If you are a new caregivers, then let this be a cautionary tale. The point is caregiver stress is potent, and it sneaks up on you, and before you know it your whole life has changed and you are putting one foot in front of the other – day in and day out, and you have almost stopped asking yourself questions like: how did I get here?

The point is, there is a way out, there really is!  But you are going to have to open your mind to new information and take some NEW actions in your life. Please take a moment and read this article, and see how much of what Bobby was dealing with, you are dealing with too. I will have a little more information for you afterward:

Caregiver stress underlies death

The Associated Press

Published: November 9, 2009

FORT LAUDERDALE – The scenes seared into the minds of those who know Bobby Yurkanin differ only in place: Whether in the pool, dinner table or bowling alley, he was a 50-something man whose life had been handed over to the sickness of his parents. Always, his father was by his side. Yurkanin moved across the country to care for his dying mother. He did it again as his father sank into Alzheimer’s disease. When the father grew combative, his son would calm him. When he didn’t want to eat, his son would cajole him to take some fruit. Friends said the son assumed a caretaker role out of necessity, despite a strained family history. Those who saw him and his father together often described the younger Yurkanin as dutiful, patient, dedicated. All this disappears into a single scene: A beachside argument, the father’s lifeless body lying in the sand, and accusing fingers pointing to the son. Witnesses said they saw the son drag his father into the ocean, let the waves steal his breath, then tell a 911 dispatcher called by an onlooker to turn the ambulance around. Yurkanin arrived at his lowest point a relentless, thankless, solitary task of caring for someone with dementia. Millions know it. But Yurkanin’s downward spiral ended with a charge of murder.

Yurkanin’s father was a successful engineer, businessman and inventor. The family’s New Jersey home sold for nearly $1 million, and there were two more modest homes in Florida. Yurkanin told psychologists his father was an abusive alcoholic, his mother prone to psychotic episodes. He told his ex-wife his father abused his mother and his grandmother. For Bobby, an only child, growing up was traumatic, said his attorney, Michael Weinstein. Still, he finished college and graduate school. He started law school, dropped out and set up a paralegal business. He also excelled at something that would be cited when his father lay helpless on the beach. He was a lifeguard, whose skill is evident in newspaper clippings of his wins at competitions.

In the late 1990s, moved home to Short Hills, N.J., to help care for his mother, who had cancer. Not long after she died in 2001, his father showed signs of Alzheimer’s. When the father resisted going to a nursing home, his son felt he had no choice but to take over his care. Bobby Yurkanin assumed supervision and he and his father moved to Florida. The disease progressed. In time, Bobby showed signs of losing control. In Palm Coast, neighbor Kathy Mittelstadt told police she once saw the father wandering the street in a diaper. Numerous other times, she said she heard the son yelling and cursing. “I can’t wait till you’re no longer one of my problems,” she said she heard him say.

Troubles mount

At the Playa Del Sol condominiums in Fort Lauderdale, where father and son settled, complaints grew. The father was often wandered in hallways, sometimes nude, and into others’ condos. Residents complained he dressed in front of an open door. Once, when Yurkanin was alerted his dad had been wandering, condo employees said he went into a profane tirade in the lobby. Anna Fico, a friend who sometimes helped watch the father, said Bobby Yurkanin confided that it was all too much. It’s a dilemma many others have confronted. Sometimes the stress has led to physical abuse. People caring for a spouse or parent with dementia have been accused of killing them in rage or expression of mercy to end their misery. Caregivers have gone to prison. “The demands on caregivers are almost unfathomable,” said Gail Gazelle, an assistant professor at Harvard Medical School who is an advocate for Alzheimer’s patients and their families. “The anger, guilt, and shame that caregivers experience is intense.”

No one accused Yurkanin of abuse, Weinstein said. Many who saw him with his father said the son would grow frustrated by his father and sometimes raise his voice, but his care was undeniably loving. Kenneth Carter, an old friend of Yurkanin, said he saw him with his father during several visits. He described both men as alcoholics, but said he was impressed with the way his friend cared for his father. Carter said the old man would suddenly stand and recite the Gettysburg Address or sing “The Star-Spangled Banner.” He would take off his shorts and run down the street. His mood could change at a moment; he would kick, scream, and become combative “Bobby would always come to Bob’s rescue, and all would be forgiven,” Carter said. One Friday, Yurkanin had to give his father a shower and a shave, Fico, called and asked them to join her at the beach. Yurkanin agrees.

Fight over swimsuit

Not long after they arrive, the father pulls down his swimsuit and stands on the sand exposed. “Bob! Bob! Bob! Your father took off his clothes!” Fico yelled. What happened varies according to witness accounts. Yurkanin swears at his father, said a couple nearby. With the father resisting, the son took him into the water. Onlookers and Fico used the word “drag.” It’s the only way his father will learn, the only way he’ll listen, a witness quoted Yurkanin as saying with profanity. In waist-deep waters, Yurkanin removes his father’s shorts and diaper as Fico helps hold him up. The son goes ashore to throw out the diaper, returns, and dives underneath to try to put the shorts back on. It doesn’t work. Some say the father continues to fight his son. Some witnesses said Yurkanin pulled his father’s ankles upward to put the shorts on and the old man’s head went underwater. But attorney Weinstein said it’s not clear the father’s head was submerged. Whatever happened, it was clear to many watching the father was distressed. Joanne Turing, peering through binoculars from her balcony, saw the man’s face change color. “This guy’s dying,” she said.

After Yurkanin brought his father ashore, some witnesses were puzzled by his actions. He put him so close to the water, waves washed over his face, some said. Others didn’t know why it took so long for him to begin cardiopulmonary resuscitation. Some said he never did. Three witnesses called 911. In one call, an agitated Yurkanin is heard yelling that an ambulance isn’t needed. “Oh sir, you’re kidding,” the called said. “I’m his son!” he shouted. “Get out of here! Don’t send any ambulance. I don’t want any ambulance.” The caller pleads with the operator: “Help! Help! Help! Help! Help!” Yurkanin took the phone and told the dispatcher: “Forget it! Don’t you come! If you come, I’m not releasing this patient.” A man grabs the phone, asking the dispatcher to send help.Paramedics arrive. As they prepare to take the father to Holy Cross Hospital, where he arrived in critical condition, the son asked to ride along. He is told to wait for police, who asked Yurkanin why he forced his father in the water. “He smelled bad,” he replied.

The father died the next day. The death is ruled a homicide and Yurkanin, 53, is arrested two weeks later on a first-degree murder charge. He is free on bond while awaiting trial in January. If convicted, he could be sentenced to life in prison. Weinstein said Yurkanin’s response was a culmination of “deep-rooted psychological issues,” not malice. Psychologists hired by Weinstein said Yurkanin felt helpless, hopeless. They said caring for two chronically ill parents for many years resulted in post-traumatic stress disorder.

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Terrible.  Whether you believe what Bobby did is inexcusable, or you believe he is a victim of stress and driven insane by an uncontrollable demented father, as caregivers we can identify with him at least a little bit.  However, if you can identify with Bobby a lot, and you are a lone caregiver taking care of difficult parent or spouse, you need to take action.  I am sure you have heard  that stress is killer: that long-term stress significantly increases your chance for a heart attack, stroke, even cancer. And you may have even seen the statistics that half of all caregivers die before the person they caring for.  I can’t prove it, but I think the only imaginable reason for this scary statistic is stress. Stress kills!
But you can reduce and even eliminate your stress, and you can do it without changing your circumstances or putting your loved one in a nursing home.  This post is already too long for me to be specific, but I have been writing about stress management for years.  I have developed a number of techniques that work great for caregivers who cannot get away or out of the house.
In fact, I will be posting many on them in my newsletter. But for now, let me recommend Guided Imagery.  In fact, if you sign up for my newsletter (and get on the list for a free stress management CD), you will get a free download today!  Just look for the sign up for in the upper-left part of this page, put in your name and email and I will send you a free, no obligations required, guided imagery recording that was written and produced by a Gerontologist, just for caregivers like yourself.
Donahue Vanderhider, MSG
Gerontologist, Hypnotherapist
p.s.  I was deeply moved by this story, if you feel you are against the ropes and can picture yourself in Bobby’s shoes, hurting the one you love, please contact me immediately. Do not worry about your identity, it is safe with me.  But let me help or at least steer you to someone or some agency that can.  Contact me here just leave a response in the comments section, or write me at donahueg@alumni.usc.edu

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NATIONAL FAMILY CAREGIVERS MONTH, 2009
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BY THE PRESIDENT OF THE UNITED STATES OF AMERICA
A PROCLAMATION

The true strength of the American family finds its roots in an unwavering commitment to care for one another. In difficult times, Americans come together to ensure our loved ones are comfortable and safe. Whether caring for a parent, relative, or child, our Nation’s caregivers selflessly devote their time and energy to the well-being of those they look after. During National Family Caregivers Month, we honor the individuals providing essential services to family members who could not otherwise look after themselves.

Caregiver support is at the heart of my Administration’s commitment to assisting our Nation’s families. Currently, a variety of programs and services offer help and encouragement to family caregivers. The National Family Caregiver Support Program and the Lifespan Respite Care Act include important resources for caregivers of children and adults, with opportunities to receive much-needed assistance and take part in support programs with other families. These programs allow individuals to remain with their families for as long as possible while helping to ensure the wellness of participating care providers.

My Administration’s dedication to caregivers is also embodied in our efforts to develop policies to support workers trying to manage their responsibilities on the job and at home. Families are best able to care for their loved ones when they can take time away from work without fear of losing their job or their income. We all have roles to play, including employers, by providing paid leave, flexible work arrangements, and other programs when feasible, to help ensure that caregivers are able to successfully meet their work and household responsibilities.

Every day, family caregivers assist loved ones with tasks ranging from personal care and homemaking, to transportation and financial assistance. As the foundation of America’s long-term care system, these individuals give millions of Americans the peace of mind and security that only family can provide.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim November 2009 as National Family Caregivers Month. I encourage all Americans to pay tribute and support those who are caring for their family members, friends, and neighbors in need of assistance.

IN WITNESS WHEREOF, I have hereunto set my hand this thirtieth day of October, in the year of our Lord two thousand nine, and of the Independence of the United States of America the two hundred and thirty-fourth.

BARACK OBAMA

If you are a family caregiver, chances are you are sometimes verging on burnout. If so, look in the upper-left hand corner of this blog and sign up for the free stress management CD. Even though the CD is not available, you will get a link to the first track of that CD, so you can start listening to it right away.

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Caring for someone with Alzheimer’s is quite literally a thankless task. Which is not to say that it’s unappreciated, but aside from the first few months of an early diagnosis, Alzheimer’s sufferers are generally oblivious of their own condition and naturally cannot comprehend the sacrifices made by their loved ones to keep them healthy?
But please don’t read the above as being a condemnation of the unfortunate souls that have no control over what has happened to them. Clearly, the tragedy of Alzheimer’s is that sufferers very early on “forget” they are ill. Rather read it as a recognition and acknowledgement of the selflessness and integrity of their caregivers. Because I think something happens in the heart of most caregivers that gives them the resolve to commit, in all likelihood, the next decade of their life to the care and protection of the person they love the most in the world. But sadly at the same time that a caregiver is making this internal resolution, they are also grieving the finality of the diagnosis “Alzheimer’s” and everything that means.
Too often, the tragedy and heartbreak of the caregiver is pushed to the background, as the Alzheimer’s sufferer becomes the identified patient and the focus of everyone’s attention. Tragically, in addition to the personal commitment a caregiver makes to the care and well-being of their loved one, they often are subconsciously abandoning many of their own goals and desires. Caregivers, while taking on all these new tasks and challenges that they never expected, are subconsciously strapping themselves in for the long haul.

Stubbornness is Born
Rising to the occasion; facing financial, legal and other new responsibilities requires a certain amount of tenacity and determination. For this reason I find that caregivers seem to be uniquely strong-willed. Maybe it takes a stubborn streak to be able to focus on the day-to-day grind of meeting the needs of another adult that has lost the ability to reason and make their own ’safe’ decisions. But while stubbornness can be a positive personality trait when it keeps a caregiver going month after month, year after year; it can also be a negative trait when it suppresses an open mind to new and alternate solutions. Being hardheaded can prevent us from accepting and opening up to new concepts and ideas. It narrows our field of vision. Like blinders on a horse it creates a closed-mind.
I have seen it over and over again, maybe you have too. Too often I meet a caregiver that is wound up and ready to explode. It is obvious to everyone around them that they are extremely stressed out. Unfortunately they often have trouble admitting it. They will tell you that everything is under control. “I’m fine”, they say. And, tragically, to the extent that they are “fine”, they are heading for a very big crash. Besides the toxic effects of stress on one’s health. They are closed off to the concept of surrender and the acknowledgement that they need help. But that is exactly what every caregiver needs…help. Caregivers need to address and overcome long-term stress. It is a good bet that long-term stress is responsible for the statistic that more than 50% of caregivers die before the person they are caring for.
Dr. Jamie Huysman, the co-founder of Leeza’s Place, gives a great talk. In his speeches you can often hear him suggest that caregivers “take the oxygen first”. What an excellent analogy! This is an ideal comparison to the average caregiver’s dilemma. And, this is the very idea that I have been advocating all along. Flight attendants, when giving preflight instructions, tell people traveling with children, that if cabin pressure is lost and the oxygen masks are deployed, that they should put their own oxygen mask on before helping their children with their mask. The reason is that there are only a few second before you lose consciousness, and in order to be effective and save others, the parent (caregiver) needs to see to their own needs first.
So I plead with my stubborn caregivers. Acknowledge that you need help, and be willing to hand the job over to others whenever you can, and start taking care of your own needs. Remember that alarming statistic from above that over 50% of caregivers die before the person they are caring for. Well add another 10 – 20% that become incapacitated and no longer able to continue caregiving for their parent or spouse. The causes are many, it might be a major stroke, or a serious cancer, or a fractured pelvis. Unfortunately, I have seen too many a cases of older adults with profound Alzheimer’s whose caregiver is out of the picture.
Over the years I have spoken, one-on-one, with hundreds of caregivers. My overwhelming impression is their unwavering love and commitment they have to their loved one. They genuinely believe that no one can care for their parent or spouse as well as they can. They believe that no one can possibly know their loved one as well as them. To large degree I agree with them, and this is why I continue to recommend that they take action to preserve their health. Because if something happens to them, who will care for their loved one? So to manage their stress I encourage them to use adult day care, to find respite care options, and to attend support groups. For example; adult day care gives them a day off from their 24/7 caregiving, respite care allows them run errands and see to their own health care appoints, and in support groups they can share their experience with newer caregivers, while learning from older, more experienced caregivers.
I also recommend board and care and assisted living. Usually, this is the option that caregivers are very specific about NOT doing. And there you have it, before you can finish your sentence; they are railing how they will never allow it. These stubborn caregivers have made up their mind, sometimes decades earlier, and unfortunately they are not about to listen to anything that challenges their preconceived notions.
But there are some very good reasons for being open-minded about assisted living. For example there comes a time, especially with Alzheimer’s disease, that the care needs of the sufferer are greater than the caregiver’s ability to provide for them. Given this circumstance, it would be a terrible disservice to the loved one, to keep them at home with inadequate care. Unfortunately, when their care needs are this advanced, the only placement option is going to be a nursing home. Their care needs at that stage are medical not custodial, and therefore surpass the services offered by assisted living or board and care.
I want to propose a better course of action. If the caregiver relents, and a placement is made into an assisted living, you now have a home-like environment that will be comfortable and friendly towards the disabled family member. The caregiver is still able to oversee their loved one’s care. And as I will explain in a moment, the loved one can age in place and the assisted living will continue to provide care, even end-of-life care. The difference is this – an assisted living will accept a client that meets their resident profile, and when they do they generally make an unwritten commitment to their families. They will always provide the necessary care, and they will monitor the resident’s decline and keep the family and the doctors properly informed.
Generally the first level of care is bathing assistance, medication management, and personal laundry. As more care is need they will provide care and supervision, incontinence care, wheelchair transfers and escorts. They can also utilize home health care, which provides an added dimension of care. And when the end is approaching they can introduce the family to hospice, which in turn can provide the maximum amount of comfort measures to insure a peaceful passing.
So, if you approach board and care or assisted living while your loved one fairly high functioning, chances are they will keep your parent or spouse no matter how much they decline, thus permanently avoided a nursing home placement. But if you wait too long, no assisted living will touch them. Not so much because they don’t want to, but because the State regulations that govern them have strict admission criteria. But once a client is admitted, the same State regulations protect the resident’s ability to remain in the “community” thus aging in place. All told, we have a strong argument in favor of placement for your loved one, and preferably sooner than later.
Granted no one knows or loves your parent or spouse the way you do. No one understands them or their needs the way you do. There is not a person or facility that can replace you. So it behooves you and your loved one that you take proper care of yourself, so that you are around for the rest of their life. It makes sense that you use every available resource at your disposal.
Finally, let me give you one more reason for considering assisted living. There is only one of you. You prepare and provide meals, you ensure a safe and secure home, you provide transportation, you are the eyes and the ears for the doctor and you provide medication management. You also provide socialization and human contact and interaction. You make sure they have emotional stability, and feel loved. You provide entertainment. You do the laundry and make sure they bathe. You see to their grooming and you make sure they are dressed appropriately. However, if you were to place your loved one in a nice assisted living community, all these activities of daily living will be handled by their staff. This in turn frees you up to not only spend time on yourself, but to also spend quality time with your parent or spouse. So I suggest you take the oxygen first, and you health will improve, you will extend your life, and you will always be there to care and advocate for your loved one.

Thanks for reading this far. This post was actually published in ezines.com with you in mind…my goal is to provide caregivers like you a voice as well as recognition. I realize that assisted living may not be in the cards for you. Whatever the reason; be it financial or bad memories from another time in your life. But whatever your choice, I want you to feel supported. Please feel free to leave a message, ask a question or sign up to be the list for a free stress management CD.